Many of you helped us purchase an Upsee for G for his birthday back in August. When we got it, we agree to work with his old physical therapist at the University of St. Augustine as part of a study to see how it effects kids with low muscle tone like G. The Upsee product is so new that there is very little research available that shows that it actually helps kids. One of his doctors actually called it a “fad product” since it’s gotten so much attention since it’s release. We actually heard about it on Reddit.
The goal of the study is to get G in the Upsee daily for at least 15-30 minutes and see how that improves his general mobility and muscle tone. The team had G do a few physical things before we started using the Upsee and will have him do those things after the study to see how he’s improved. The hope is that if we can start providing evidence of how this helps kids, we might see insurances more likely to pay for the product for other families.
We’re about four weeks in right now and so far I’d say that the difference is quite noticeable. When we first got G into the Upsee, he’d just hang there and not do a whole lot. Every now and then, he’s lock his legs for a few seconds in an effort to push himself up, but that was about it.
As the days have gone by, I can feel him be much more active in the harness. Being that the poor guy is attached to me through the whole time, I can feel him as he activates his legs and core. We started off putting him in there and letting him watch TV. As time has gone by, I’ve noticed that he’s much more interested in being active…he wants to move and look at things and he’s vocalized that.
In fact, as we move, I can feel him use his arms and core much more actively. He wants to grab things off of the table. He wants to watch the washing machine run, he just wants to experience everything now that he’s finally off of his belly.
So I’d say so far that the Upsee has really made a difference for him. It’s helping him get stronger and giving him a chance to see things from a standing perspective that he hasn’t gotten in his stander. The other night, the two of us were kicking a ball back and forth with Mama C and he had a great time. What a cool blessing to kick a ball with my little boy for the first time! So for us it’s been a real blessing.
The study hasn’t concluded yet and there is word that we might extend it since he’s doing well. Once we get some more results, we’ll try to post what we can here.